Saints Preserve Us

Entry 1. 9:31 a.m.

Jenny is still in bed, but has talked to Edit at VM. We should expect some calls today. The reason the block never really worked is because the pain is coming from the duodenum, and the pressure is on nerves not deadened by the plexus block.  So, that makes sense.  She can't up her dosage of oxycodone, but they will likely prescribe a fentanyl patch for her.  They also have scheduled the procedure (placing of the stent) for the 27th, but support her coming in on Sunday inpatient.  More as I learn new information.

I have been up since 3:43 a.m. worried about the implications of chemo. She is getting a pill six days a week, an infusion one. But if she keeps nothing down, what use is a pill? When she empties the contents of her stomach--she empties the entire contents of her stomach.  With her cancer raging, what is the point of this chemotherapy if she will just throw it up? She will absorb enough to get the side effects maybe, but to do any good? The palliative care doctor said that each new line of chemo has diminishing returns.  I am worried about her needlessly suffering, but will support her completely, whatever she decides, saints preserve us.

We are way behind schedule for the day. We should have been at Hans' Deli 35 minutes ago. Place will be packed

today.  It's not as good as the place in American Lake, Hans'" isn't, but it is good enough Jenny wants to go, and I am stressed because she can't stand for long periods or really  even short periods, if I am being accurate. I have shopping to do for tonight's party. Lots of things to do.  Clean the mess of a kitchen that our house cleaner did 2 days ago, I swear to God.

Jenny's friends, not sure how many, will be coming over today.  For sure Cam, Heather and Amelia.  Probably more. Jenny's spirits are up because of this and because the care team met and discussed her plight this morning. She said they all agreed she made the right decision not being admitted, but continued vomiting would be a reason to seek admission.


I should note that Jenny is very supportive of the rapid testing tonight. Given the number of different people she sees each day/week/month, I am glad.

Entry 2    2:50 p.m.

Jenny's friend since she was 3 years old, Amelia is here.  She took 2 COVID-19 rapid tests this week.  I had all of these things to do, all of these errands to run, but Jenny's cancer waylaid our plans.  We were going to go as early as possible to Hans' Deli. Jenny could barely function when she woke up at 10.  She did manage to take a shower, but it was everything in her to do so, and needed help dressing, for the first time. I didn't dress her completely, but I gathered her clothes for her. It took her some time to dress, and even longer to get downstairs. She went one by one sliding down the 20 or so steps to the living room, too weak to walk.  

I drove us to Hans' deli.  


Comments

  1. AshleyDecember 23, 2021 at 4:15 PM

    Thinking of you today- and pretty much every day. Making pot roast for dinner, and it has been perfuming the air for a couple of hours. I think my mom has commented on the aroma... and asked what it is... about five times in the last hour.
    Watching someone you love fade away is soul crushing.
    I hope that your guests today bring you and your family joy and peace and an energy boost.
    Sending love from an appropriate social distance...
    xoxoxoxo (and for the fur babies- xoxo)

    ReplyDelete
    Replies
    1. nigelMarch 8, 2022 at 6:04 PM

      I appreciate all of your responses here, they really mean a lot.

      Delete

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