And Then One Day You Find Ten Years Have Got Behind You
Entry 1 Goals, Planning, And Dark At The End Of The Tunnel When I was in my mid-20s, I lived a mile or so away from my friend Shaun, who was 21. We met when I was a counselor at Camp Waskowitz MDA camp and he a camper. MD stands for muscular dystrophy. Shaun had Duchenne's, a particularly virulent genetic disorder that kills all the muscles in your body, slowly, starting generally around the age of 2. 99.9999 percent of people with Duchenne's don't make 20. I could go into the science of the disease, but suffice it to say, it is a fucker. Time Flies Anyway, one day, Shaun calls me up and asks me to come over. He said he needed to talk to me. We were friends, not close friends, but bonded after spending more than a decade together with others at camp. I hopped in my truck and headed over. When I got there, his parents were gone, or just leaving. I don't remember. Given that he couldn't move any part of his body save his fingers and his head, they...